{"id":1538,"date":"2026-09-30T13:52:04","date_gmt":"2026-09-30T11:52:04","guid":{"rendered":"https:\/\/albalab.eu\/?p=1538"},"modified":"2026-09-30T14:02:24","modified_gmt":"2026-09-30T12:02:24","slug":"a-new-doctoral-thesis-defended-by-the-alba-group-analyzes-the-communication-and-interactions-of-spanish-rare-disease-associations-on-twitter-x","status":"publish","type":"post","link":"https:\/\/albalab.eu\/en\/2026\/09\/30\/a-new-doctoral-thesis-defended-by-the-alba-group-analyzes-the-communication-and-interactions-of-spanish-rare-disease-associations-on-twitter-x\/","title":{"rendered":"A new doctoral thesis defended by the ALBA group analyzes the communication and interactions of Spanish rare disease associations on Twitter\/X"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1538\" class=\"elementor elementor-1538 elementor-1526\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2ccca0f e-flex e-con-boxed e-con e-parent\" data-id=\"2ccca0f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4213875 elementor-widget elementor-widget-heading\" data-id=\"4213875\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">A new doctoral thesis defended by the ALBA group analyzes the communication and interactions of Spanish rare disease associations on Twitter\/X<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-241c965 e-flex e-con-boxed e-con e-parent\" data-id=\"241c965\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8684fff elementor-widget elementor-widget-image\" data-id=\"8684fff\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1-1024x768.jpg\" class=\"attachment-large size-large wp-image-1536\" alt=\"Tesis Marta 1\" srcset=\"https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1-1024x768.jpg 1024w, https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1-300x225.jpg 300w, https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1-768x576.jpg 768w, https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1-1536x1152.jpg 1536w, https:\/\/albalab.eu\/wp-content\/uploads\/2026\/09\/Tesis-Marta-1.jpg 2048w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c6ad4a elementor-widget elementor-widget-text-editor\" data-id=\"7c6ad4a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"PDq2pG_selectionAnchorContainer\" dir=\"auto\" data-start=\"530\" data-end=\"813\">On <strong data-start=\"540\" data-end=\"563\">July 30, 2026<\/strong>, our colleague <strong data-start=\"583\" data-end=\"610\">Marta Mart\u00ednez Mart\u00ednez<\/strong> defended her doctoral thesis, titled <em data-start=\"648\" data-end=\"742\">&#8220;Interactions and dynamics of Spanish rare disease associations on Twitter\/X,&#8221;<\/em> at the San Isidoro University Library of the University of Le\u00f3n.<\/p><p dir=\"auto\" data-start=\"815\" data-end=\"1149\">The research analyzes the activity of Spanish rare disease associations on Twitter\/X, paying special attention to <strong data-start=\"949\" data-end=\"1111\">how they interact with each other and with other actors, what characteristics their messages present, and what factors influence the attention their posts receive<\/strong>, measured through retweets and likes.<\/p><p dir=\"auto\" data-start=\"1151\" data-end=\"1449\">The work combines different methodological approaches, such as <strong data-start=\"1219\" data-end=\"1298\">social network analysis, content analysis, and statistical models<\/strong>. Additionally, it incorporates Antonovsky&#8217;s salutogenic framework and sense of coherence to study the communication developed by these organizations. <\/p><p dir=\"auto\" data-start=\"1451\" data-end=\"1752\">The results highlight the role of social media as spaces for <strong data-start=\"1531\" data-end=\"1577\">information, visibility, support, and connection<\/strong> for associations and people living with rare diseases, a group especially conditioned by the low prevalence and dispersion of these pathologies.<\/p><p dir=\"auto\" data-start=\"1754\" data-end=\"1954\">The defense was attended by several colleagues from the <strong data-start=\"1826\" data-end=\"1857\">ALBA research group<\/strong>, who accompanied Marta at this important moment in her academic and research career.<\/p><p dir=\"auto\" data-start=\"1956\" data-end=\"2183\">The thesis, developed within the doctoral program <strong data-start=\"2007\" data-end=\"2036\">Health and Human Motricity<\/strong>, was supervised by <strong data-start=\"2058\" data-end=\"2088\">Dr. Pilar M\u00e1rqu\u00e9s S\u00e1nchez <\/strong>  and <strong data-start=\"2094\" data-end=\"2125\">Dr. Isa\u00edas Garc\u00eda Rodr\u00edguez<\/strong>, and received the grade of <strong data-start=\"2155\" data-end=\"2182\">summa cum laude<\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>A new doctoral thesis defended by the ALBA group analyzes the communication and interactions of Spanish rare disease associations on Twitter\/X On July 30, 2026, our colleague Marta Mart\u00ednez Mart\u00ednez defended her doctoral thesis, titled &#8220;Interactions and dynamics of Spanish rare disease associations on Twitter\/X,&#8221; at the San Isidoro University Library of the University of [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":1536,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[98],"tags":[],"class_list":["post-1538","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-doctoral-thesis"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>A new doctoral thesis defended by the ALBA group analyzes the communication and interactions of Spanish rare disease associations on Twitter\/X - ALBA Lab<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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